Tag Archives: dementia

Health and Clinical Commissioning Groups

Lee Stribling

Why do you need to know this?

You’ve probably realised by now that issues around types of care, funding, assessment and all things dementia related are not straightforward.  At some point the person you care for will have contact with Health professionals such as their GP. I thought it would be useful to explain the current structure (November 2012) so you could see how things are linked.  I’ll also talk about CCGs (the Clinical Commissioning Groups) as these are groups of doctors who decide how the budget is spent as well as signposting you to resources about how things will look from April 2013.


If there is a lack of provision for services for people with dementia in your area, you may wish to contact the CCG to highlight this gap so that they can make decisions as to whether this is a local need.  CCGs are comprised of other people too, including those who use services and you may wish to be involved in this.

We get there early and find Dad's dementia worse

As Dad struggles to lift his head, it’s clear how immobile he’s become since last time

 

Rebecca Ley with her dad, who has dementia.

The second time I visited Dad over Christmas was far less rosy than the first. It was Boxing Day but decorations at the home had already begun to wilt. And this time, instead of finding Dad sitting in the main room cleanly shaven, my husband and I are told he is still in his bedroom.

I walk down the corridor with trepidation. His bedroom scares me. While many of the residents have cosy rooms, personalised by their families with photographs, lamps and cushions, Dad’s is a barren, institutional space.

It’s not that we haven’t tried. When he first moved in, my mum and sisters took pictures and got a television mounted on the wall. But none of it lasted long. Dad’s habit of destroying things in the night meant that nothing was safe. Now there’s just an empty bracket where the TV was, and the walls are blank, save for pockmarks and the odd, unidentifiable smear.

The focus of the room is his bed, a hospital one with bars to stop him slipping out. And today he’s lying in it, his head tilted to the window and his bare torso only just covered by a sheet.

Dementia patients going undiagnosed

Half the people who have dementia have not been diagnosed

 

Published on Wednesday 16 January 2013 09:03

Latest figures reveal there are almost 5,500 living in central Lancashire who have dementia.

However, it is believed that around half the people who have dementia have not been diagnosed and are living with the disease without receiving the help and support they need.

The Alzheimer’s Society has revealed an increase in the number of people living with dementia with 42,000 people diagnosed with the condition – an increase of almost 4,000 since last year.

However, there are thought to be another 43,000 people living with the condition who have not been diagnosed yet.

In the central Lancashire area which includes Preston and surrounding areas, there were 2,544 diagnosed with dementia in 2012 compared to 2,313 in 2011.