Tag Archives: dementia

Hard hitting report calls for earlier diagnosis of dementia and faster ‘co-ordinated care’

Obtaining a diagnosis of dementia can bring a whole range of benefits to patients and their carers, according to a new report.

Date of article: 19-Nov-13

 

The ‘Benefits of Timely Dementia Diagnosis’, due to be published at the annual conference of the Dementia Action Alliance, found diagnosis can reduce anxiety, help people plan for the future, allow them to access local support and give them the tools they need to explain their condition to friends and family.

“In the past the value of dementia diagnosis has too often been measured in terms of what medication a GP can give a patient,” said Simon Kitchen, executive lead of the Dementia Action Alliance (DAA).

“Realising that diagnosis can bring many emotional benefits and put people back in control of their lives changes the terms of the argument and may help to push up timely diagnosis rates, which are still unacceptably low.”

The issue of whether it is beneficial for someone with dementia to have an early diagnosis, has long been a subject of debate, with some saying not to diagnose protects the person with dementia from ‘harm or unnecessary stress’.

Other opponents to early diagnosis say if little can be done in terms of effective medical treatment, there’s little point in diagnosing dementia.

However this report shows there are a whole raft of benefits to diagnosis which ‘directly counters’ these arguments.

The report reveals that ‘access to medication stands out as the single most important benefit’ however it ‘appears less important than the ability to plan, to access services and to adjust emotionally and psychologically’.

Improving dementia care: ask those who have lived with the illness

Personal experiences are often ignored by the social care system, but professionals can learn a lot from patients and their families

 

An understanding of what dementia is really like both for the individual and their family is often missed in care training. Photograph: Burger/Phanie / Rex Features

 

Dementia care training is a competitive marketplace, populated mostly by people from academic and scientific backgrounds. They can tell you the statistics, what the latest research has discovered, and the widely recognised methods we should all be following when we provide care to a person with dementia.

What is often missed is the understanding about what dementia is really like – both for the individual and their family.

I’m not an academic. University wasn’t an option for me; my dad needed me and there was nowhere else I was going to be other than by his side. He lived with vascular dementia for 19 years, going 10 years without a diagnosis and then spending nine years in three different care homes. Dad’s dementia began when I was just 12 years old, and went on to dominate my teens and twenties. He passed away in 2012 aged 85.

Five million carers do not have ‘control’ over their lives

Three quarters of carers in Britain say they are losing “control” of their lives, major study shows

 

Carers putting their own health at risk, census shows

NHS research found that growing numbers of carers are having to put their own lives on hold to support disabled or elderly loved-ones.

The study showed that more than half of those with caring responsibilities are struggling with disabilities or illnesses of their own – in many cases for decades on end.

The recent national census showed that 10 per cent of the entire population of the UK – or 6.5 million people – provide regular unpaid care to someone else, with over a third of them dedicating more than 20 hours a week.

But a survey of 58,000 carers in England by the Government’s Health and Social Care Information Centre showed that for all but a handful it is now having a major impact on their own lives, careers and even health.