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“Five minutes is enough.” says Dundee United legend's wife

Dundee United legend’s wife takes dementia campaign to Holyrood
By Jenny Thomson, 28 June 2013 8.03am.

The woman leading a campaign to get free personal care for people with early onset dementia is to make her case at the Scottish Parliament.

Amanda Kopel, from Kirriemuir, started her campaign after her husband, former Dundee United star Frank Kopel, 64, was diagnosed with the disease in 2009.

As he is under 65 his care is paid for by his family, at a cost of £400 a week, but Amanda wants a change in the law to see all those with the disease receive the same benefits.

She started a petition calling on the Scottish Parliament to urge the Scottish Government to raise awareness of the daily issues suffered by people with Alzheimer’s and dementia and to ensure that free personal care is made available for all sufferers regardless of age.

Dead Darlington woman asked why she has not attended DWP appointments

Dead Darlington woman asked why she has not attended DWP appointments

UNWANTED MAIL: Malcolm Pearse UNWANTED MAIL: Malcolm Pearse

THE partner of a woman who died in April has slammed officials for repeatedly asking to explain why she has not shown up for appointments with the Department of Work and Pensions (DWP).

Darlington woman Patricia Howe, 48, died after suffering a massive brain haemorrhage in April.

Despite her partner immediately informing them of her death, the DWP continued to send Ms Howe letters.

Since her death, Ms Howe has been invited to attend appointments to discuss her claim for Employment and Support Allowance.

When she failed to attend, she received more letters demanding to know why she had not been present.

Malcolm Pearse, her partner of 14 years, slammed the actions of the DWP and said he had been left devastated by their incompetence

He said: “I told them the day after she died and they stopped her money straight away but they are still sending letters.

'Carers walk the cancer journey with patients but need more support'

Up to 1.1 million people are thought to be providing unpaid care to a friend or family member who has cancer but they are getting neither the information nor help they need

guardian.co.uk,

Researchers found carers are often not told how best to support patients or where they can turn for practical or emotional support (picture posed by models).

When Fiona O’Kelly’s widowed mum was diagnosed with leukaemia two years ago, her life changed overnight. “It’s like our roles suddenly flipped,” she recalls. “Mum used to help me look after my two boys but now I look after her. She was independent up to then but her cancer and the treatment have left her frail and affected her memory.

“There are times when I think I can’t cope but I know staying in her own home and being cared for by family is the best thing for Mum.”

O’Kelly, whose sons are 10 and 16, negotiated a year off work following the diagnosis, and has since dropped her hours from four to two days a week. Her husband has also changed his working hours to minimise childcare costs.