Category Archives: dementia

How the ‘perfect storm of cuts’ is shrinking one woman’s life choices

Rose Fernandes’s council wants to reduce care for her autistic daughter and her mother with dementia, and a cap on housing benefit could force the family to live apart

 

Rose Fernandes with her daughter Crystal, who is autistic and faces having her time with a carer cut from nine hours a day to four hours a week. Photograph: Graeme Robertson

As politicians shrink the state, Rose Fernandes’s life choices dwindle. Her day is sandwiched between caring for her autistic 25-year-old daughter Crystal and her 83-year-old mother, Maria, who suffers from dementia. But since 2010, she has been caught in a whirlwind of cuts, reducing her life to a series of arguments – in and out of lawyers’ offices – to preserve her way of life.

It began two years ago when her local council in Brent, north-west London, said it wanted to reduce the number of hours it would pay a carer to look after her daughter from nine hours a day to just four hours a week. But Fernandes says the day-to-day care for Crystal is constant – she needs to be washed, dressed, fed, taken to the toilet and watched all the time because she is not aware of everyday dangers.

Norfolk to get its first Admiral Nurse for dementia care

Norfolk is to get its first Admiral Nurse to help people with dementia and their families, a charity has revealed
By Kim Briscoe
Tuesday, May 8, 2012
6:30 AM

 

Admiral Nurses have been described as offering the same sort of support as Macmillan nurses, but for families and people affected by dementia instead of cancer.

There are only 85 Admiral Nurses in the UK and none in Norfolk, but a year ago Dementia UK, the charity behind the nurses, unveiled plans to bring their care to the county.

Barbara Stephens, chief executive of Dementia UK, said: “The very good news is that we have got some funding from a funder, but we can’t say who at this stage.

Our struggle with dementia may be ‘blueprint for care’

Syd Mayne has praised the support he and his wife received

By SUE GYFORD
Published on Monday 7 May 2012 12:00

THE self-penned story of a man whose wife was diagnosed with dementia is to be sent to 14,000 care home workers around Britain to encourage them to treat their residents with compassion.

Syd Mayne, 78, wrote Journey into Loneliness after his wife Kate moved from their home in Bonnyrigg to Springfield Bank Care Home in December 2010.

The book charts their life together, the struggle their family faced when Kate was diagnosed with dementia, and the dedication of staff at the care home. The couple met at a dance at the Fountainbridge Palais in 1954, and had three children. Mr Mayne became a TV writer and then sports writer at The Scotsman, and his wife, now 80, worked as a nursery nurse.