Category Archives: Carers

‘Joey has opened my eyes’

Joey has just celebrated his 16th birthday but unlike his peers who’d have stayed up late partying, he went to bed early. His father describes the challenges – and joys – of raising a boy with profound, multiple learning difficulties

 

Stephen Unwin and his son: ‘Joey has opened my eyes to another way of thinking about human beings.’ Photograph: Christian Sinibaldi for the Guardian

Some people would say that my second son is stupid. I understand what they mean. But it’s a word that I’ve come to use less casually than most. Just a few days before the opening ceremony for the Paralympic Games, he had a pretty significant birthday. But while most boys would have celebrated turning 16 by tasting the forbidden fruits of adult life and drinking too much cheap cider, Joey blew out the candles on his birthday cake with a giggle of excitement, jumped up and down with pleasure unwrapping the presents he’d been given and went to bed – entirely sober – at 7pm.

Because, you see, Joey is very different from most 16-year-olds. He has profound and multiple learning difficulties. His condition is still undiagnosed, although it’s almost certainly the result of a genetic glitch. He’s an attractive boy, with a shock of brilliant blond hair and a dazzling smile. But he’s very small, sometimes painfully thin and suffers from severe epilepsy. His coordination is poor and he’s extremely timid. He’s terribly vulnerable and when the epilepsy is bad, he’s pitiful. Most significantly, he has very restricted cognitive abilities and only a limited understanding of what is going on around him. He communicates in rudimentary Makaton sign language (and makes noises with a clear commitment to what he wants) but has never uttered a single word: not “mum”, not “dad”, nothing. What at first was termed “developmental delay” is now quite clearly a profound and serious learning disability.

Carers benefit from courses to help them look after themselves

The Looking After Me Course

Carers have been given useful advice to help them looking after themselves.
The Looking After Me Course, run by Education Programme for Patients, is aimed at carers providing them with information such as relaxation, healthy eating and communication skills.
A recent course was run in Pembrokeshire where 50 per cent of the participants cared for their spouse or partner and a further 40 per cent were carers for their child with long-term health conditions. Fifty per cent of participants also had a long-term health condition themselves.

Carers Friendship Group celebrates its third anniversary

“I HARDLY left the house before meeting this group, they have given me another life alongside caring.”

Friday, September 14, 2012

Grimsby Telegraph

These are the words of Mimi Tebeje, pictured, who joined in with the celebrations to wish The Carers Friendship Group a very happy third year running.

  1. MEETING UP: Members of the Carers Friendship Group pictured during their third anniversary celebration dinner at the Punch Bowl in Cleethorpes. Pictured with the group are, Stewart Coley, left, and Tony Packham, right, who set up the group. Picture: Rick Byrne

Mimi, of Hainton Avenue, Grimsby, is a mum-of-two and full time carer to her 15-year-old daughter Ruth Kidene, who suffers with genetic problems reducing her mobility.

Two years ago she joined the friendship group which formed off the back of meetings at the North East Lincolnshire Carers Centre in Victoria Street, Grimsby.

It is for carers and ex-carers who, without the support of each other, would otherwise not have much of a social life.

The group which now has around 30 members, meets regularly for drinks, meals and informal chats.