Monthly Archives: September 2012

Britain unprepared for 'tsunami' of dementia patients

More than one million people are expected to be living with the disease in 10 years, but there are not enough care homes. 

Sunday 16 September 2012

Britain’s dementia crisis is so huge that care homes and the health system will soon be unable to cater for the “tsunami” of people expected to be living with the condition, health experts warn. Unless a radical overhaul is taken, they say that hundreds of thousands of patients will face a future defined only by neglect.

Days before World Alzheimer’s Day and the start of a three-month national dementia awareness campaign launched by the Department of Health (DoH), researchers and former government advisers told The Independent on Sunday that if current trends continue, the healthcare system will reach saturation point in coming years.

One in three people over the age of 65 will go to their grave with dementia – a group of symptoms that slowly cause the mind to deteriorate. More than 800,000 people in this country live with the condition, and the number is expected to rise to more than a million in less than 10 years’ time. Britons now fear dementia more than cancer or death, according to a national poll, but new research by the Alzheimer’s Society shows that fewer than one in 10 people aged 55 or over have a plan in place to deal with a family member’s diagnosis.

‘I was diagnosed with Alzheimer’s at 52’

Alzheimer’s disease is a dreadful burden at any time of life but people who present in their 50s and 60s have additional problems”
15 September 2012 Last updated at 01:50
 Ann Johnson received an honorary doctorate from the University of Bolton for services to healthcare

Ann Johnson moved into a care home in Greater Manchester soon after she was diagnosed with dementia six years ago. Nothing unusual in that perhaps, except that Ann was then just 52 years old.

She has early-onset Alzheimer’s, something which affects 5% of people with the disease, and she is passionate about talking about it.

A former nurse and lecturer at the University of Manchester, she is no stranger to the disease. She and her mother watched her father suffer with Alzheimer’s over many years before he died.

‘Joey has opened my eyes’

Joey has just celebrated his 16th birthday but unlike his peers who’d have stayed up late partying, he went to bed early. His father describes the challenges – and joys – of raising a boy with profound, multiple learning difficulties

 

Stephen Unwin and his son: ‘Joey has opened my eyes to another way of thinking about human beings.’ Photograph: Christian Sinibaldi for the Guardian

Some people would say that my second son is stupid. I understand what they mean. But it’s a word that I’ve come to use less casually than most. Just a few days before the opening ceremony for the Paralympic Games, he had a pretty significant birthday. But while most boys would have celebrated turning 16 by tasting the forbidden fruits of adult life and drinking too much cheap cider, Joey blew out the candles on his birthday cake with a giggle of excitement, jumped up and down with pleasure unwrapping the presents he’d been given and went to bed – entirely sober – at 7pm.

Because, you see, Joey is very different from most 16-year-olds. He has profound and multiple learning difficulties. His condition is still undiagnosed, although it’s almost certainly the result of a genetic glitch. He’s an attractive boy, with a shock of brilliant blond hair and a dazzling smile. But he’s very small, sometimes painfully thin and suffers from severe epilepsy. His coordination is poor and he’s extremely timid. He’s terribly vulnerable and when the epilepsy is bad, he’s pitiful. Most significantly, he has very restricted cognitive abilities and only a limited understanding of what is going on around him. He communicates in rudimentary Makaton sign language (and makes noises with a clear commitment to what he wants) but has never uttered a single word: not “mum”, not “dad”, nothing. What at first was termed “developmental delay” is now quite clearly a profound and serious learning disability.