Tag Archives: Multiple Sclerosis
Care in my own home nightmare.
PAID Carer from hell
From the person being cared for.
As a disabled 35 year old lady who suffers from Primary Progressive Multiple Sclerosis and severely disabled and use a wheelchair fulltime, I need care 24/7 care, this is provided by a paid carer and my mother, I have lots of information about me for them to read and support from my mother who teaches them how to move me and hoist me and how I like to be cared for (I do have rights)
Dismay over rejection of MS pill trialled in Norwich
This will leave some MS patients with no effective treatment choice.
By KIM BRISCOE, Health correspondent Friday, August 5, 2011
6.30 AM
A mother-of-two who has been taking the first pill to treat multiple sclerosis has told of her “dread” of being without the drug, after it was initially rejected by the medicines watchdog.
“I dread the thought of it not being available to me and this decision makes me sad and cross that it won’t be generally available to anyone else.”
MS patient Amanda Cook
In draft guidance, the National Institute for Health and Clinical Excellence (Nice) has rejected the drug fingolimod, which has been trialled in Norwich, recommending it is not made freely available to NHS patients in England.
Stem cell treatment ‘could prevent MS brain damage’
It is hoped these new trials will eventually lead to a proven treatment and a reduction in the draw of overseas treatments.
A major new global clinical trial will test whether stem cells can be safely used to treat multiple sclerosis (MS), it was announced today.
8:39AM BST 29 Jul 2011
The £10 million trial, involving up to 200 patients around the world, is due to start later this year and will last between three and five years.
