Tag Archives: HPP

Highlighting potentially fatal rare disease – HPP

Norwich mum tells of heartbreak at toddler’s rare condition

Kate Scotter Monday, May 16, 2011
6:30 AM

A Norwich mum has spoken of her heartache after discovering her son had a potentially fatal rare syndrome – and that she carried its genes. 

Two-year-old Preston Quinton looks like a happy little toddler with his curly brown hair and toothless smile. But he has already had to undergo two major head operations and doctors currently do not know if he will be able to run, walk or jump later in life.