Tag Archives: carers
Getting The Balance Right
Special Saturday
I have 4 children, 3 youngest are all autistic. My oldest Ely is however your typical 11 year old tween. Trying to get the balance right between the 3 youngest and Ely is fairly challenging at times and sometimes I hate to say this but I fail dismally usually upsetting one of them.
Now Ely knows we have a very special family and most of the time she understands, why she can’t do certain things. Like having her friends round, we have tried to get the others used to the idea of a stranger in the house but it just upsets them too much and causes massive meltdowns. Unfortunately I can’t do things with Ely such as going shopping together more so now I have had my strokes I find it very difficult and tiring to leave the house.
The youngest Briton to survive a liver transplant, celebrates her first birthday
- The youngest person in Britain to survive a liver transplant has defied the odds to celebrate her 1st birthday yesterday.
- Lottie clung to life for five weeks until miraculously a donor was found
- Lottie’s parents couldn’t be with her following her life-saving operation after the riots in August last year left the hospital in lockdown
- Lottie’s parents have launched a campaign to encourage more organ donors
The youngest person in Britain to survive a liver transplant has defied the odds to celebrate her first birthday yesterday.
Lottie Bryon-Edmond was given just hours to live after being born with a rare condition which gave her toxic levels of iron in her liver.
She went straight to the top of Britain’s transplant list and clung to life for five weeks until a suitable donor was eventually found.
The odds of finding a suitable donor for Lottie were incredibly slim – with just five a year usually coming forward from children who have passed away.
Amazingly, Lottie’s new liver came from a living donor, whose parents are believed to have come forward after reading about the baby’s desperate plight.
Lottie underwent the lifesaving eight-hour operation at Birmingham Children’s Hospital aged just five weeks. Doctors said she could have died at any point during surgery.
The delicate procedure itself offered only a 50 per cent survival rate but Lottie managed to pull through, becoming the youngest person in Britain to live after a transplant.
Decision on social care funding in England facing delay
The government is to agree in principle to cap the amount elderly and disabled people in England pay towards the cost of social care, when it publishes plans on the issue next week.
But there will be no final agreement on how to fund the changes, and a decision will not be made until the spending review expected late next year.
Labour said talks to try to secure a cross-party consensus had broken down.
The health secretary said ministers were committed to continuing talks.
Last July, a review chaired by economist Andrew Dilnot put forward a raft of ideas for changes to adult social care funding in England.
The most notable of these was a £35,000 cap on what people should pay before they get help from the state.
