Tag Archives: carers

Hard hitting report calls for earlier diagnosis of dementia and faster ‘co-ordinated care’

Obtaining a diagnosis of dementia can bring a whole range of benefits to patients and their carers, according to a new report.

Date of article: 19-Nov-13

 

The ‘Benefits of Timely Dementia Diagnosis’, due to be published at the annual conference of the Dementia Action Alliance, found diagnosis can reduce anxiety, help people plan for the future, allow them to access local support and give them the tools they need to explain their condition to friends and family.

“In the past the value of dementia diagnosis has too often been measured in terms of what medication a GP can give a patient,” said Simon Kitchen, executive lead of the Dementia Action Alliance (DAA).

“Realising that diagnosis can bring many emotional benefits and put people back in control of their lives changes the terms of the argument and may help to push up timely diagnosis rates, which are still unacceptably low.”

The issue of whether it is beneficial for someone with dementia to have an early diagnosis, has long been a subject of debate, with some saying not to diagnose protects the person with dementia from ‘harm or unnecessary stress’.

Other opponents to early diagnosis say if little can be done in terms of effective medical treatment, there’s little point in diagnosing dementia.

However this report shows there are a whole raft of benefits to diagnosis which ‘directly counters’ these arguments.

The report reveals that ‘access to medication stands out as the single most important benefit’ however it ‘appears less important than the ability to plan, to access services and to adjust emotionally and psychologically’.

Bedroom tax campaigner takes protest to Westminster

Pembrokeshire bedroom tax campaigner takes protest to Westminster

 Campaign: Paul Rutherford outside the Houses of Parliament.

BEDROOM tax campaigner Paul Rutherford has taken his case from Pembrokeshire to Westminster.

The 56-year-old grandfather and his wife Sue provide round-the-clock care for their profoundly-disabled grandson, Warren, aged 13.

Their case, first highlighted in the Western Telegraph, has now been put forward by the Child Poverty Action Group as the very first judicial review challenge of the discretionary housing payment – known as the bedroom tax – on behalf of children who need overnight care.

Although the Rutherfords, who live in Clynderwen, have been successful in an appeal to Pembrokeshire County Council over the ‘spare’ bedroom in their housing association bungalow, Mr Rutherford has vowed to keep on campaigning against what he says is the injustice of the levy.

Improving dementia care: ask those who have lived with the illness

Personal experiences are often ignored by the social care system, but professionals can learn a lot from patients and their families

 

An understanding of what dementia is really like both for the individual and their family is often missed in care training. Photograph: Burger/Phanie / Rex Features

 

Dementia care training is a competitive marketplace, populated mostly by people from academic and scientific backgrounds. They can tell you the statistics, what the latest research has discovered, and the widely recognised methods we should all be following when we provide care to a person with dementia.

What is often missed is the understanding about what dementia is really like – both for the individual and their family.

I’m not an academic. University wasn’t an option for me; my dad needed me and there was nowhere else I was going to be other than by his side. He lived with vascular dementia for 19 years, going 10 years without a diagnosis and then spending nine years in three different care homes. Dad’s dementia began when I was just 12 years old, and went on to dominate my teens and twenties. He passed away in 2012 aged 85.