Dementia: how our campaign for patient dignity in hospitals took off

When I wrote about my father’s death, it touched many readers, all passionate to help dementia sufferers

‘Be kind, for everyone you meet is fighting a hard battle.” Over the past few weeks, I have become freshly aware of the wisdom of this saying, aware both of this great battle we fight and of the kindness of people that runs like an underground river beneath the noise and hurtle of public events.

Two months ago, I wrote a piece in the Observer about the death of my father, who had had dementia for many years, but had been leading a contented life at home until he went into hospital with leg ulcers. I described how he entered able to walk, talk, wash himself, feed himself, work in his beloved garden, listen to poetry, be happy – and how, five weeks later, he came out a skeleton, incontinent, immobile, inarticulate, bed-bound. He lived like a ghost in his own life for eight more months; his dying was both a great sorrow but also his release.

What it really costs to be a carer to a loved one

SOCIETY calls them “unpaid carers” but they might prefer “husband”, “wife”, “grandparent” or “friend”.

By Surrey Mirror  |  Posted: January 17, 2015

Whatever their title, for millions of over-50s in Britain there is an unseen cost to life and their finances when they look after loved ones.

Research by Saga Personal Finance shows that nearly a fifth of Britain’s over-50s regularly care for an elderly loved one or friend, without financial reward, in their own home or at another location.

Norwich music teacher’s toolkit for fighting dementia

Music teacher with a passion for helping people with dementia

Pat Phelan (left) with her daughter Lesley Evans. Picture: Matthew Usher.

Monday, January 12, 2015
6:30 AM

A music teacher with a passion for helping people with dementia has come up with a musical toolkit to help families, friends and healthcare professionals communicate more effectively with those affected by the disease.

Using autobiographical collections of the music and sounds which have coloured their lives, volunteers help people who have been newly-diagnosed with dementia to create a Music Mirror which can be used to engage them as the disease progresses.