How the ‘perfect storm of cuts’ is shrinking one woman’s life choices

Rose Fernandes’s council wants to reduce care for her autistic daughter and her mother with dementia, and a cap on housing benefit could force the family to live apart

 

Rose Fernandes with her daughter Crystal, who is autistic and faces having her time with a carer cut from nine hours a day to four hours a week. Photograph: Graeme Robertson

As politicians shrink the state, Rose Fernandes’s life choices dwindle. Her day is sandwiched between caring for her autistic 25-year-old daughter Crystal and her 83-year-old mother, Maria, who suffers from dementia. But since 2010, she has been caught in a whirlwind of cuts, reducing her life to a series of arguments – in and out of lawyers’ offices – to preserve her way of life.

It began two years ago when her local council in Brent, north-west London, said it wanted to reduce the number of hours it would pay a carer to look after her daughter from nine hours a day to just four hours a week. But Fernandes says the day-to-day care for Crystal is constant – she needs to be washed, dressed, fed, taken to the toilet and watched all the time because she is not aware of everyday dangers.

Norfolk ex-soldier with multiple sclerosis having to sell family home to pay care bill

West Norfolk pensioners pay thousands towards care bill for ex-Royal Artillery officer who served in Northern Ireland

by Donna Semmens Thursday, May 10, 2012
7:36 AM

 

Tim Sudbury who has MS and his wife Marion, at their home in Walpole St Peter which they are having to leave because of a battle with Norfolk County Council over care fees. Picture: Matthew Usher.

The financial struggles facing the elderly and disabled were shown last night after a former soldier suffering from multiple sclerosis said he would have to sell his family home of 30 years to pay his annual care bills.

Carers UK responds to announcement of draft Care and Support Bill

 

Carers UK responds to announcement of draft Care and Support Bill

The Government has announced in the Queen’s Speech, which sets out the parliamentary programme for the next year, that a draft Care and Support Bill will be published – but that full legislation would be postponed until the next parliamentary session.

In response, Heléna Herklots, Chief Executive of Carers UK said:

“It is deeply disappointing that the Government has decided to delay social care legislation until the next parliamentary session. Whilst we welcome the opportunity to work with Government on a draft Bill, the Government has failed to deliver on commitments to get modernisation of social care into law by next year.