MP calls for legislation to protect sibling carers

The Rt Hon Alan Johnson MP

21 November 2013

The Rt Hon Alan Johnson MP, who was brought up by his sister from the age of 13 following their mother’s death, has called for legislation to improve the situation of brothers and sisters who care for their siblings in the absence of a parent. In Britain it is estimated there are over 45,000 siblings raising their younger brothers and sisters. In some cases this is as a result of parental death, or because of parental imprisonment, mental illness, drug and alcohol misuse or domestic violence – or a combination of these factors.

The kidney patient subject to bedroom tax – even if room is used for dialysis machine

Plight of MP’s brother raises questions about fairness of controversial welfare reform

It has been 30 years since Rivers Pound moved into his specially adapted council flat in Earl’s Court, west London. The 55-year-old has been on and off dialysis since his first kidney failure at 19, and his flat was one of three in the block designed with its own dialysis room, part of a council scheme to house residents with renal problems.

Then, in April, the Coalition introduced its welfare reforms and everything changed. Although Rivers’s body was rejecting a third transplanted kidney, he was not on dialysis at that moment and so the room that housed his equipment was deemed surplus to requirements.

According to the inflexible rules of the under-occupancy policy known as the “bedroom tax”, he had to find another £120 a month for this “spare” room – or find a new home.

Hard hitting report calls for earlier diagnosis of dementia and faster ‘co-ordinated care’

Obtaining a diagnosis of dementia can bring a whole range of benefits to patients and their carers, according to a new report.

Date of article: 19-Nov-13

 

The ‘Benefits of Timely Dementia Diagnosis’, due to be published at the annual conference of the Dementia Action Alliance, found diagnosis can reduce anxiety, help people plan for the future, allow them to access local support and give them the tools they need to explain their condition to friends and family.

“In the past the value of dementia diagnosis has too often been measured in terms of what medication a GP can give a patient,” said Simon Kitchen, executive lead of the Dementia Action Alliance (DAA).

“Realising that diagnosis can bring many emotional benefits and put people back in control of their lives changes the terms of the argument and may help to push up timely diagnosis rates, which are still unacceptably low.”

The issue of whether it is beneficial for someone with dementia to have an early diagnosis, has long been a subject of debate, with some saying not to diagnose protects the person with dementia from ‘harm or unnecessary stress’.

Other opponents to early diagnosis say if little can be done in terms of effective medical treatment, there’s little point in diagnosing dementia.

However this report shows there are a whole raft of benefits to diagnosis which ‘directly counters’ these arguments.

The report reveals that ‘access to medication stands out as the single most important benefit’ however it ‘appears less important than the ability to plan, to access services and to adjust emotionally and psychologically’.