Category Archives: disability

More help is needed for stroke patients

Calls have been made for the NHS to give greater psychological support to stroke patients after a new report revealed that the emotional effects were as devastating as the physical ones.

Too many stroke survivors and their families are abandoned when they leave hospital and left without the support they need to help them cope, according to the Stroke Association.

A poll of 2,700 stroke survivors across the UK found that 41pc said they felt abandoned after leaving hospital.

Some 59pc admitted that they felt depressed and two thirds said they experienced anxiety as a direct result of their stroke.

But, despite this, more than half said they received no information or practical advice to help them cope with the emotional impact.

Strokes affect around 152,000 people in the UK every year and the brain damage caused by the condition means that they are the largest cause of adult disability in the UK.

As part of the Stroke Association’s report, Feeling Overwhelmed, more than 200 people from across the East of England were interviewed about their experiences.

While hospital care is rated highly, the emotional strain on survivors and their families when they return home is underestimated – and often overlooked by health and social care services, said the charity.

Healthwatch Camden is an independent watchdog that will give carers a stronger voice

A watchdog for patients and carers in Camden to comment on their health services has been launched.

An independent watchdog has been set up for people in Camden to comment on health services in their area An independent watchdog has been set up for people in Camden to comment on health services in their area

Rachael Getzels Saturday, April 27, 2013

A watchdog for patients and carers in Camden to comment on their health services has been launched.

Peer support for service users like Chill4us is for Carers

Why providers should invest in peer support for service users

A group of charitable providers have set up an independent organisation to provide peer support to service users. This approach can help improve service quality, efficiency and flexibility, say Bernd Sass and Sue Taylor.

 

Monday 22 April 2013 14:50

Providers have long been told of the need to personalise their services and use any such redesign as an opportunity to involve and empower people with support needs. At the same time ‘lived experience’ has been seen as the answer to many problems in access to services and in achieving lasting and positive health and independent living outcomes, not to mention productivity gains. Yet little concrete action has followed from either providers or commissioners to bring the multiple positive effects of peer support to fruition.

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Now a consortium of charities in the North East has set up an independent user-led organisation for disabled people in order to change this. Peer Support North East has been established as a community interest company by Age UK, Alzheimer’s Society, Your Voice Counts, Mental Health Matters and Sight Service Gateshead.
It now has 20 mentors who are supporting 350 of their peers a month, with disabled and older people supporting each other across age ranges and impairment groups, cutting across the boundaries between services.