MP George Freeman
Annabelle Dickson, Political Editor Tuesday, November 26, 2013
10:28 AM
Patients should be given “full and unfettered” access to their medical records, Norfolk MP George Freeman will tell parliament today as he calls for a change in the law so patients own their own medical data.In a Ten Minute Rule Bill the Mid Norfolk MP will call for patients to be able to hand their medical data over to researchers to help drive new treatments for hard-to-cure diseases like Alzheimer’s and cancer.
His bill is supported by more than 50 UK medical charities including the prostate cancer campaign group Movember, Marie Curie, the Cystic Fibrosis Trust, and a number of leading research doctors.
George Freeman MP said that patient records were too often sitting on hospital shelves gathering dust – allowing failed treatments to be repeated over and over without anyone gathering the evidence to see what works and what fails – and why.
I hope it will soon become the norm for the old to be part of the mainstream of daily life
Is it something in the air of Halifax? Or is it in the air more generally? I suspect the latter. Millions of television viewers will be there tonight – Halifax that is – watching as Celia marries Alan, both in their seventies. The BBC television series Last Tango in Halifax, is a universal success, enjoyed by old and young alike. And in that sense marks something of a tipping point.
It’s the care and support we give each other. But for some, care is more than simple kindness, it’s day to day help to get Dad up and dressed, its advocating for Mum in the bank – and for some – giving up work or education to care full time. For all carers it’s about a lot of juggling.
That’s why I’m really pleased each year Carers Rights Day gives us all a chance to raise the profile of caring, to help people recognise themselves as carers and to highlight what is available locally. It’s a time to celebrate the contribution the city’s 25,000 carers make.
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