Author Archives: wendy

Life as a young carer

Sarah Thomas, 18, started looking after her mother, who has MS, from a very early age, and later became her dad’s carer too.

But she isn’t remotely bitter about missing out on the parts of growing up that others take for granted

Sarah Thomas

Sarah Thomas with her parents, Carole and Ray: ‘I’ve never met a young carer who hasn’t been bullied – we stand out.’ Photograph: David Sillitoe for the Guardian

Ray Thomas chuckles as he recalls the sight of bread appearing to butter itself on the kitchen counter back when his daughter was at preschool. “Sarah couldn’t reach the counter to make sandwiches, so all you’d see is the bread and knife looking as though they were doing it themselves,” he says.

Sarah has been a carer for her mother, Carole, who has multiple sclerosis, since she was small. Then, when she became an adolescent and her father was diagnosed with degenerative bone disease and fibromyalgia, she had to become his carer too. “I’ve never known anything else,” says Sarah, who is now 18 and who continues to do everything from general household chores to helping with medication, providing physical assistance, filling in forms and many other day-to-day jobs.

“One of my earliest memories was being amazed to see my friend’s mum walking. I thought all mums were disabled and all dads worked long hours,” she says, as I talk to her and her parents at their terraced home in Shrewsbury. “But I can’t say I was disappointed when I found out that my mum was different,” she adds, thoughtfully. “It has meant she’s always been around and although it’s hard to say what I’d have been like if I hadn’t cared for her from a young age, I do know I’m very independent – far more so than most of my friends.”

Pub’s pyjama event for kids and carers

National Storytelling Week

Community news and events from the Boston Standard, Lincolnshire: bostonstandard.co.uk, on Twitter @standardboston

Published on Friday 1 February 2013 12:25

A new campaign to provide bedtime packs to child carers aged 5-12 has been launched by a Boston Pub.

The Spirit of Endeavour’s Pyjama Project is taking place this week, which is National Storytelling Week until Saturday.

People are encouraged to donate children’s pyjamas or (good condition) bedtime books

'Promising' dementia drug made from pigs' brains could help 200,000 sufferers

The new drug called cerebrolysin improves concentration, memory and mood among those suffering with vascular dementia

  • The new drug is licensed in some countries but not in the UK or U.S.
  • No serious side effects were reported from taking the drug

By Jenny Hope

PUBLISHED: 00:46, 31 January 2013 | UPDATED: 03:32, 31 January 2013

 

The new drug called cerebrolysin improves concentration, memory processing and mood in patients

Dementia sufferers may benefit from a ‘promising’ new treatment made from pigs’ brains, say researchers.

The new drug – called cerebrolysin – improves concentration, memory processing and mood in patients with a certain kind of dementia known as vascular dementia, which affects up to 200,000 Britons.

No treatment has yet been specifically developed for vascular dementia.

But the new drug is licensed in some countries for dementia, stroke and traumatic brain injury – although not yet here or in the US.

Researcher Li He of the Department of Neurology at Sichuan University in Sichuan, China, said ‘Our review suggests that Cerebrolysin can help improve cognitive and global function in patients with mild to moderate severity vascular dementia.’

Cerebrolysin is a drug made from pig brain proteins that has produced some positive results from small vascular dementia trials.

Larger trials are now underway.

But the drug is not easy to administer, with regular intravenous infusions necessary, says the review.