Register may make life easier for those with MS

By DAISY WALLAGE
Monday, May 30, 2011
8.30 AM

A solution to the country’s “shocking” record on multiple sclerosis (MS) care could be in the hands of patients themselves under a pioneering new project.

The MS Society has warned that the UK is one of the worst countries in Europe in which to have the neurological condition, with “patchy care”, a shortage in expert nurses and neurologists who are “stretched to the limit”.

It is launching a new register combining patient details and routine NHS information with expert clinical data to support future research and hopefully transform the delivery of drugs, care and services.