Author Archives: Maureen

Care in my own home nightmare.

August 8, 2011   Carers, Multiple Sclerosis

PAID Carer from hell

From the person being cared for.

As a disabled 35 year old lady who suffers from Primary Progressive Multiple Sclerosis and severely disabled and use a wheelchair fulltime, I need care 24/7 care, this is provided by a paid carer and my mother, I have lots of information about me for them to read and support from my mother who teaches them how to move me and hoist me and how I like to be cared for (I do have rights)

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Chill4us is 12 years old today

August 6, 2011   Carers

 

Congratulations everyone Chill4us is 12 years old today.
 
We could not have done it without your support over the years and would like to take this opportunity to thank you all, it has made chill4us the success it is today and will continue for many years to come.
 
 
We are having a chat room party tonight at 8pm to celebrate, there will be a quiz at 8.15pm.
 
 
Many thanks to everyone who read and post comments on the front page, it is very much appreciated.
 
hacon
 
Chill4us Team
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Dismay over rejection of MS pill trialled in Norwich

August 5, 2011   Carers, Multiple Sclerosis, Norfolk

This will leave some MS patients with no effective treatment choice.

By KIM BRISCOE, Health correspondent Friday, August 5, 2011
6.30 AM

A mother-of-two who has been taking the first pill to treat multiple sclerosis has told of her “dread” of being without the drug, after it was initially rejected by the medicines watchdog.

 

 

“I dread the thought of it not being available to me and this decision makes me sad and cross that it won’t be generally available to anyone else.”

MS patient Amanda Cook

In draft guidance, the National Institute for Health and Clinical Excellence (Nice) has rejected the drug fingolimod, which has been trialled in Norwich, recommending it is not made freely available to NHS patients in England.

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