22 July, 2014 | By Neil Churchill
Following the publication of NHS England’s Commitments to Carers, I spent a day shadowing carers and hearing their experiences first hand, writes Neil Churchill
I was sitting in the kitchen with the first carer I would shadow when his mobile rang. It was his mum’s social worker calling to discuss what would happen when a respite placement ended. As he spoke, his landline rang and another social worker left a message. Today was the “eye of the storm” in juggling his own disability with caring for a mother and father who had both lost their independence, and who needed round the clock support.
“Welcome to my world,” he said as he came off the phone.
‘To him, care was fragmented and not a system at all; he was the only one who held all the pieces’
This was the start of a day organised for me by Carers Support West Sussex, as part of their efforts to help me understand the experience of being a carer, so I could be more effective at delivering NHS England’s Commitment to Carers.