Hospice time we receive is limited

There is very much a theme about the role of carers going on in blog land this weekend with two fellow bloggers inviting posts to highlight life as a carer.  The timing was great for me as this weekend I’m on my own, Andy is away working in the States and I am at home with all four children.

This is hard work.   Today I have changed 7 stoma bags, 1 catheter, I have given two intravenous medications, disconnected an intravenous drip, put a new drip up, administered countless enteral drugs, carried my daughter upstairs in order to bath her and then carried her downstairs to her bedroom and the list goes on…Factor into this the needs of the three other children then preparing meals, laundry, shopping, homework, there is very little time left for me.  I survive on coffee and chocolate and the children’s left overs.  It’s why I go running, it actually gives me a break and I’m itching to get out running this weekend but can’t because I’m on my own and Daisy cannot be left with anyone other than a trained carer, and that’s only when she doesn’t have her TPN running (when her drip is connected she can only be left with Andy or I or a qualified nurse).