Category Archives: Huntington’s

Norfolk’s singing neuro nurse is getting the message across

Norfolk’s singing neuro nurse is getting the message across

UEA lecturer Steve Smith with his sons Simon and Dan (not pictured) are to embark on a 5000-mile charity motorcycle ride. UEA lecturer Steve Smith with his sons Simon and Dan (not pictured) are to embark on a 5000-mile charity motorcycle ride.

Music and motorcycles are helping a University of East Anglia lecturer to raise awareness of serious brain conditions

Steve Smith works at the UEA’s school of nursing and midwifery and is an expert in neurological conditions such as Parkinson’s disease, Alzheimer’s, MS, stroke, and Huntington’s disease.

Carer helped by support programme

Burnham carer helped by support programme

11:40am Friday 25th March 2011

PICTURED are the carers from Burnham, with Sylvie seen stood second left.
PICTURED are the carers from Burnham, with Sylvie seen stood second left.

A BURNHAM carer whose husband, son and daughter suffer the same crippling disease has taken advantage of a vital support programme.

Sylvie Richards has looked after her husband, 43-year-old John, for the last 20 years as he suffers from Huntington’s Disease.

To make matters worse for Sylvie, both her son and daughter have also been diagnosed with the devastating illness, and her son, who was diagnosed 12 years ago, now lives full time in a care home.

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