Tag Archives: Multiple Sclerosis

Family unpaid carers need more help!

‘Government exploiting kindness of carers’

Published on Friday 8 February 2013 15:36

A man forced to give up his job to become a full time carer has today accused the Government of exploiting kindness.

Richard Burnside, 50, from Carrickfergus, Co Antrim, had to quit his well paid manufacturing job in 2007 when his wife’s multiple sclerosis condition deteriorated.

Mr Burnside, who now lives on the £58-a-week allowance topped up by £100 earned through a part-time hotel job, has called for carers’ benefits to be increased.

“£58-a-week – that is way below the minimum wage,” he said.

Hotel boss raising money for MS charity in memory of uncle

Hotel boss raising money for MS charity in memory of uncle

jpco/31/1/13 Katie Savage Manager of Langshott Manor promoting Afternoon tea (Pic by Jon Rigby)jpco/31/1/13 Katie Savage Manager of Langshott Manor promoting Afternoon tea (Pic by Jon Rigby)

Published on Monday 4 February 2013 08:03

A hotel manager has dedicated a year of fund raisers to a charity in memory of her uncle.

Katie Savage, 32, was appointed manager of Langshott Manor, in Ladbroke Road, Horley, last September and has taken the new year as an opportunity to make the MS (Multiple Sclerosis) Society the hotel’s ‘charity of the year’.

This means every fund raising event that takes place at the hotel in 2013 will raise money for that charity.

Katie said the cause was very close to her heart. “My uncle suffered from the disease from the age of 28 and sadly passed away at the age of 44 leaving behind two young sons.”

Life as a young carer

Sarah Thomas, 18, started looking after her mother, who has MS, from a very early age, and later became her dad’s carer too.

But she isn’t remotely bitter about missing out on the parts of growing up that others take for granted

Sarah Thomas

Sarah Thomas with her parents, Carole and Ray: ‘I’ve never met a young carer who hasn’t been bullied – we stand out.’ Photograph: David Sillitoe for the Guardian

Ray Thomas chuckles as he recalls the sight of bread appearing to butter itself on the kitchen counter back when his daughter was at preschool. “Sarah couldn’t reach the counter to make sandwiches, so all you’d see is the bread and knife looking as though they were doing it themselves,” he says.

Sarah has been a carer for her mother, Carole, who has multiple sclerosis, since she was small. Then, when she became an adolescent and her father was diagnosed with degenerative bone disease and fibromyalgia, she had to become his carer too. “I’ve never known anything else,” says Sarah, who is now 18 and who continues to do everything from general household chores to helping with medication, providing physical assistance, filling in forms and many other day-to-day jobs.

“One of my earliest memories was being amazed to see my friend’s mum walking. I thought all mums were disabled and all dads worked long hours,” she says, as I talk to her and her parents at their terraced home in Shrewsbury. “But I can’t say I was disappointed when I found out that my mum was different,” she adds, thoughtfully. “It has meant she’s always been around and although it’s hard to say what I’d have been like if I hadn’t cared for her from a young age, I do know I’m very independent – far more so than most of my friends.”