Individual budgets can benefit carers- the meeting in London

Re: Individual budgets can benefit carers- the meeting in Lo

Postby snowqueen » 19 Nov 2011, 07:30

Thank you Maureen, I will let you know how it goes.  I have made an appointment with my MP to see if he has any advice he can offer.  I strongly feel that my son's choice to stay where he is should override any policy, which changes with the wind  anyway.  He is a human beng, not a sheep and I will not have him pushed where he doesn't want to go just because some anonymous people in anonymous offices flatter themselves that they know what is best for him.

Lyn
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Re: Individual budgets can benefit carers- the meeting in Lo

Postby wendy » 19 Nov 2011, 11:06

I strongly feel that my son's choice to stay where he is should override any policy, which changes with the wind  anyway.  He is a human beng, not a sheep and I will not have him pushed where he doesn't want to go just because some anonymous people in anonymous offices flatter themselves that they know what is best for him.


Dear Lyn,
I like your words very much, and they are true.  Your son is important and it is such a shame that you have to struggle to get the best for him.

If you wish, please mention Chill4us to the MP, we have several MP's who support us, and I think it may be a help to you.
As Mo says, please let us know how you get on, and keep on going.
love
Wendy
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Re: Individual budgets can benefit carers- the meeting in London

Postby snowqueen » 19 Nov 2011, 15:48

Dear Wendy,

Many thanks for your kind words.  I will certainly mention Chill4us to my MP.  If he hasn't heard of it before, he soon will.  We've always found him to be very supportive and interested in disability issues.

The present struggle (after numerous previous ones) is, in my opinion, totally unnecessary.  I would have thought that Social Services had enough unhappy clients on their books to deal with but obviously not when they try to disrupt the lives of clients who are happy with their situation.

Lyn
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Re: Individual budgets can benefit carers- the meeting in London

Postby wendy » 19 Nov 2011, 16:18

I feel sure when you mention the MP's that are involved with us
Chloe Smith
Norman Lamb
Simon Wright
Stephen O'Brien
etc.

Then I think he will be only more willing to help you.
Bless you and good luck.  Don't give in.
love
Wendy
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Re: Individual budgets can benefit carers- the meeting in London

Postby wendy » 19 Nov 2011, 16:22

Dear Lyn,
that sounds as if I was showing off, I didnt mean it like that at all. I just want the best for you and your son.
Wendy
xx
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Re: Individual budgets can benefit carers- the meeting in London

Postby snowqueen » 19 Nov 2011, 23:10

Dear Wendy,

I'll mention those names to our MP as he may know some of them.  Our MP is Labour and has helped us a lot in the past and has always shown an interest in any disability issues we have had.  I'll give him the web address and ask him to take a look.  I'll also ask him if he would feel able to offer any support regarding carer issues.

Lyn
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Re: Individual budgets can benefit carers- the meeting in London

Postby maureenho » 19 Nov 2011, 23:45

Lyn I wish you the very best of luck with that for you and your son and I hope you are enjoying Chill.    wo3
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Re: Individual budgets can benefit carers- the meeting in London

Postby wendy » 20 Nov 2011, 09:35

Lyn,
I shall be thinking of you and wishing you positive thoughts for your son.  He is the most important one to remember when you meet with the MP.  I feel sure he will do his best for you, and please let us know.
Wendy

http://chill4us.com/news/history-of-chill4us
Last edited by wendy on 25 Feb 2012, 19:25, edited 1 time in total.
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Re: Individual budgets can benefit carers- the meeting in Lo

Postby snowqueen » 07 Mar 2012, 21:09

Hi Everyone,

Just an update on the situation regarding my son's day centre placement.  Having spoken to our MP he wrote to Social Services and at my instigation requested an urgent assessment for my son for a personal budget.  They promised that it would be done in early 2012.  Although not in favour of personal budgets, it was the only way I could see of hopefully giving my son some control over his life instead of it being controlled by other people.

Surprise surprise, despite their promise, Social Services aren't able to do the assessment until possibly as late as Autumn.  I have made it very clear that they are not to suspend his placement at day centre until his assessment is done, which they have confirmed they won't.  Still nothing permanently sorted but at least it gives me some breathing space to gather energy ready for the next fight!!!

Lyn
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