Category Archives: learning difficulties

‘Joey has opened my eyes’

Joey has just celebrated his 16th birthday but unlike his peers who’d have stayed up late partying, he went to bed early. His father describes the challenges – and joys – of raising a boy with profound, multiple learning difficulties

 

Stephen Unwin and his son: ‘Joey has opened my eyes to another way of thinking about human beings.’ Photograph: Christian Sinibaldi for the Guardian

Some people would say that my second son is stupid. I understand what they mean. But it’s a word that I’ve come to use less casually than most. Just a few days before the opening ceremony for the Paralympic Games, he had a pretty significant birthday. But while most boys would have celebrated turning 16 by tasting the forbidden fruits of adult life and drinking too much cheap cider, Joey blew out the candles on his birthday cake with a giggle of excitement, jumped up and down with pleasure unwrapping the presents he’d been given and went to bed – entirely sober – at 7pm.

Because, you see, Joey is very different from most 16-year-olds. He has profound and multiple learning difficulties. His condition is still undiagnosed, although it’s almost certainly the result of a genetic glitch. He’s an attractive boy, with a shock of brilliant blond hair and a dazzling smile. But he’s very small, sometimes painfully thin and suffers from severe epilepsy. His coordination is poor and he’s extremely timid. He’s terribly vulnerable and when the epilepsy is bad, he’s pitiful. Most significantly, he has very restricted cognitive abilities and only a limited understanding of what is going on around him. He communicates in rudimentary Makaton sign language (and makes noises with a clear commitment to what he wants) but has never uttered a single word: not “mum”, not “dad”, nothing. What at first was termed “developmental delay” is now quite clearly a profound and serious learning disability.

Glasgow appoints new and independent Carers’ Champion

Glasgow City Council has appointed former councillor Dr Christopher Mason MBE as the city’s new, independent Carers’ Champion.

The first appointment of its kind in Scotland, the Carers’ Champion will be expected to listen to carers, understand their needs, and ensure that their views are properly heard within the council.

Dr Mason, who retired as a councillor in May this year after 30 years as an elected member, was identified for the role in large part due to his long standing commitment to developing support services for people with autism in Glasgow. He was confirmed in the position following a meeting of the council’s Executive Committee, which gave cross party support to the role of Carers’ Champion.

Guernsey respite centre closes to adults

A Guernsey respite centre for those with physical and learning difficulties will close to adults at the end of the year.

Users of The Croft, in St Sampson, were told in a letter sent last week.

Health Minister Hunter Adam said his department would be meeting with those who required respite care and their carers to discuss the future.

He said the aim was to find out what type of care was needed and provide it in “a more appropriate manner”.

The centre, which is a six-bed residential unit, will continue to provide short breaks for children.

Deputy John Gollop, the States Disability Champion, said he understood the change came from a need to separate children and adults in needs of care.

http://www.bbc.co.uk/news/