Category Archives: Myalgic Encephalomyelitis
ONE in 12 children, in Gloucestershire, some as young as five are carers
Teen carer talks about a day in the life of looking after a loved one
ONE in 12 children, in Gloucestershire, some as young as five, are taking on the role of caring for a family member or friend who has a disability or illness. Here, carer OWEN KNIGHT, from Ashchurch, near Tewkesbury, writes about how too many of them are unrecognised… I AM 14 years old and currently studying for my GCSEs.
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RAISING AWARENESS: Young carer Owen Knight, 14, from Tewkesbury, said carers may not be getting the support they need
But as well as going to school and doing my homework, I also have to look after my Dad Richard who has ME.
Paul Burstow meets MPs from APPG on M.E.
Paul Burstow meets MPs from APPG on M.E.
Four members of the All Party Parliamentary Group (APPG) on M.E. – Annette Brooke MP, Ian Swales MP, David Amess MP and the Countess of Mar – met with care services minister Paul Burstow on 10 May to discuss services for people with M.E.
Annette Brooke opened the meeting by saying that, although the APPG had recently heard promising news from Professor Stephen Holgate on M.E. research, little if any improvement in NHS care has occurred for people with M.E. since the APPG reported the finding of its Inquiry in 2010
Better care for ME is a step closer in Norfolk
Better care for ME is a step closer in Norfolk
by Kim Briscoe
Tuesday, April 26, 2011
4:17 PM
Kerry Newnham, from Lowestoft, who is bed-bound with ME.
Plans to conduct pioneering research in Norwich into a debilitating illness are a step closer – as is securing better care for Norfolk and Suffolk’s most seriously ill ME patients
ME (myalgic encephalomyelitis) is a serious, disabling and chronic organic (ie physical not mental) disorder. ME has been classified by the World Health Organisation as a neurological illness. Approximately 25pc of those affected will go on to develop severe ME which is an extremely debilitating illness, sometimes lasting for years, in some cases, even decades, often rendering the sufferer completely housebound, wheelchair and bed-bound and dependent upon carers for their everyday needs.
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