Category Archives: motor neurone

Why the ice bucket challenge matters

How motor neurone disease took my dad’s voice and independence

By Hull Daily Mail  |  Posted: August 29, 2014

Hundreds in Hull and the East Riding have taken on the ice bucket challenge to fight motor neurone disease – but few had more reason than Mail competition winner Charlotte Ashfield from Hessle. James Burton reports.

For many participants, the latest charity craze is just a bit of fun.

But when Charlotte Ashfield took on the ice bucket challenge to raise cash for the fight against motor neurone disease, it was personal.

Her father has been living with the condition for almost a decade, with the disease claiming his voice.

Hundreds in Hull and the East Riding have taken on the ice bucket challenge to fight motor neurone disease – but few had more reason than Mail competition winner Charlotte Ashfield from Hessle. James Burton reports.

For many participants, the latest charity craze is just a bit of fun.

But when Charlotte Ashfield took on the ice bucket challenge to raise cash for the fight against motor neurone disease, it was personal.

Her father has been living with the condition for almost a decade, with the disease claiming his voice.

With others finally taking notice of the devastating impact of the condition, she felt the urge to get involved.

Motor Neurone Disease: ‘No words to describe how bad it is’

Lack of awareness. That was the problem when the ambulance was unable to take Pauline Scott to hospital.

Coling Hardy representing MNDA in Berwick. (Motor Neurone disease awareness)

Pauline needed medical help after a fall. She had Motor Neurone Disease. Her brother, Colin Hardy, recalls that when the ambulance arrived at her Scremerston home it was not sufficiently equipped to cope with a patient imprisoned in her own body.

Instead, Pauline’s family had to transport her in their own specially-adapted car, with paramedics sitting in the back. The ambulance followed behind as Pauline was taken to Wansbeck hospital in Ashington.

£5.5m DOH fund to improve hospice facilities across the East of England

Norfolk Hospice gets go-ahead after Government cash boost for care

ANDREW PAPWORTH Thursday, April 11, 2013
9:33 AM

A new hospice designed to meet Norfolk’s growing need for end-of-life care has today been given the green light thanks to a £510,000 government grant.

The money, part of a £5.5m Department of Health fund to improve hospice facilities across the East of England, means The Norfolk Hospice, Tapping House can now confirm it will go ahead with its long-awaited multi-million pound facility near the A148 at Hillington.

Richard Shaw, chief executive of the charity, said the new site is needed to meet the county’s ever-increasing demand for palliative care amid warnings that many people are not getting the care they need.

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