Category Archives: Batten’s disease

Parents are Carers to 4year old son with rare Batten’s disease

‘Our son won’t live past ten’: Parents become full-time carers for child blighted by fatal brain disease effecting 200 in UK

  • Four-year-old unlikely to make it to his tenth birthday and unable to walk or talk
  • Condition is so rare parents’ chance of meeting and conceiving him was one in two billion

By Sadie Whitelocks

Last updated at 3:18 PM on 9th November 2011

Distraught parents have told how their son is slowly being poisoned by his own brain.

Blighted by a fatal neurological disorder, four-year-old Morgan Mawson is unlikely to make it to his tenth birthday and is unable to walk or talk.

He is one of 200 children in the UK who have infantile Batten’s disease which is so rare his parents’ chance of meeting and conceiving him was only one in two billion.

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